We are done with the HBOT for a while! Yeah! Today was our last day! It was actually only 39 treatments, but Emi is starting first grade tomorrow and the 1:00 treatment wouldn't get us home until after school was over! So.... done, done, done. We will probably do another round in January or so.
Nate is still having 3-5 (give or take a few) siezures per day. It's still so awful to see him have them and know there is not a thing I can do at that moment to stop them. It's really heartbraking. I keep hoping that they will just go away on their own "magically". He's awake so much of the day, then at about 7:00pm he is OUT! And I mean.... OUT! We still don't know if he wakes up in the middle of the night. So, we actually are sleeping through the night, with his last feeding around 8:30 or 9:00 then his next around 6:30 or 7:00 in the morn. It seems to be just fine, I stay up usually pretty late and I always check on him before bed. Before all this mess with the meningitis ever happened, Nate was going about 9 hours at night without a feeding. So, now we have weened him back to that. It helps me stay sane. I'm so tired these days, more exhausted then ever. I don't think things are going to get any LESS busy, so I should just get used to it huh?
We have been referred to the Britain Center for early developmental work. I emailed them yesterday and am expecting a call back soon. I'm not really sure what all this would entail as far compared to what we've been doing already, but it's worth looking in to. If anyone has ever heard of it, shoot me a email about it. teamnatedog@hotmail.com.
Well, believe it or not I gotta go take care of the children! Love you all!
-Carolyn
The DOG himself
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