Hey All,
long time no blog...
So, Nate Day at the Race Track (http://www.midamericamotorplex.com/) is right around the corner. For those of you following (not that there's been much to follow really since I suck at keeping up at this), we are having another fundraiser at the track Oct. 4. It will be a lot like last year, probably not as crazy but hopefully more relaxed! There will be racing of course, a silent auction, t-shirts, live music, raffle. Hope those of you who can make it are excited because we all are at my house.
We still have tickets for the Harley Raffle, $50 per ticket for this sweet bike.
Winner does NOT need to be present (at the fundraiser) to win!
Also, we still have barstool racer tickets for $10.
Email me at teamnatedog@hotmail.com for tickets.
Nate update....
Nate is super duper! He's getting so big and if you can believe it, even cuter! He is smiling, rolling over, occasionally putting weight into his legs, eating like a champ. He's just a joy!
Recently, we saw his neurologist and are going to try to back off his anti-seizure meds a little. His seizures have decreased substantially, but he's very sleepy through the day and the combination of two of his meds could be to blame. Of course, the hard part about backing off on the meds, is if he starts having more seizures again. You just never know until you try I guess. We are going down one tablet oftTopomax per week. He used to get 5 in the morning and 5 at night, now we've got him down to 4 in the morning and 4 at night. Seems to be ok now, we shall see. It would be great to have him awake more!
He went through a phase where he was being VERY vocal. It's like he was testing out how loud he could be. But lately, he's not as vocal. Maybe the novelty of make sounds has worn off, or maybe his brain is trying to focus on another mode of development right now. Who knows, I try not to get down about it, but it's hard not to think that maybe something's wrong. We thought maybe he had an ear infection, or sore throat. Neither. Maybe his implant wasn't working. No, it's working. So, who knows.
He is going to his school 3 days a week now. On Mondays and Fridays he has different therapies-- PT, OT, Feeding, Music, Aquatics, and Auditory. Then Wednesdays he has "baby class". I feel he gets so much more from his individual therapies, but the class part IS fun. And very educational for me as a parent.
Everyone at IDC just loves little Nater Tot. I mean, who doesn't? But, his girl who does his feeding and auditory training just told me she's moving in October. She told me that she's gonna miss Nate the most. I believe her. She is just ga-ga over him. We will miss her.
Here's a few new pics of Nate and the family for your enjoyment. The wonderfully talented Amy Martin (http://www.amymartinonline.com/) worked her magic once again!
Thank you all for your continued prayers and support! We love you!
Love,
Carolyn
Thanks for the update. I am so glad to hear how well everything is going. You have a beautiful family!! The pics are great and like you said I don't know how it is possible but Nate is cuter than ever. He looks like a handsome little man. Hopefully we will be seeing you on Halloween. Take care.
ReplyDeleteSteph